They've been running lots of UNMC commercials lately. They have two that are NICU stories. They both make me smile because we are one of those people and cry a little because we are one of those people. One of them even shows a little bit of one of our favorite neonatologists :) Thanks UNMC NICU! (You can click on the links below to watch the commercials and see some cute babies).
Amy and Grant
Cassie and Braxton
3/25/2010
3/23/2010
Full time
So I always new there was nothing easy about taking care of babies - and I was prepared (for what I could be) to take care of 2 babies. But these two are a full time job all on their own.
Seriously - they need their own personal assistant.
Parker has had regular follow-ups with the pediatrician because of the tube feedings. He's also seen the eye doctor a few times and the surgeon and the ENT. Throw in a trip or two to Children's Hospital for blood work to be drawn, weekly visits from home care and now a new appointment next week with a speech therapist for feeding help for him - wowzers.
Payton has had eye check ups, been to the pediatrician, Children's Hospital for blood work, pulmonology and home care visits.
I write everything down in 3 places so that I don't forget anything. Yesterday when I showed up for Parker's eye appointment and they didn't have him listed I almost jumped down the lady's throat since it is a major logistical endeavor to get things arranged for appointments. Especially when the appointment is only for one and you don't want to expose them to any more germs than you have to.
So Chris and I are looking at possibilities of what's going to happen after we move. We've been warned by several docs that they can't go to daycare.
Hmmmmmm...what to do, what to do.
Seriously - they need their own personal assistant.
Parker has had regular follow-ups with the pediatrician because of the tube feedings. He's also seen the eye doctor a few times and the surgeon and the ENT. Throw in a trip or two to Children's Hospital for blood work to be drawn, weekly visits from home care and now a new appointment next week with a speech therapist for feeding help for him - wowzers.
Payton has had eye check ups, been to the pediatrician, Children's Hospital for blood work, pulmonology and home care visits.
I write everything down in 3 places so that I don't forget anything. Yesterday when I showed up for Parker's eye appointment and they didn't have him listed I almost jumped down the lady's throat since it is a major logistical endeavor to get things arranged for appointments. Especially when the appointment is only for one and you don't want to expose them to any more germs than you have to.
So Chris and I are looking at possibilities of what's going to happen after we move. We've been warned by several docs that they can't go to daycare.
Hmmmmmm...what to do, what to do.
3/11/2010
How did we get here?
I read something today about someone soaking in time with their kids and enjoying where they were and happily asking "how did we get here?" I like that question.
How did we get to have twins, who were 5 months old on Tuesday? How did we get to where we could bring both of them home? How did I become so well versed in all medical things related to the NICU and can hold a conversation and probably fake someone out that I"m a nurse there? How did we get to the point where I'm able to soothe and mostly handle the both of them at them same time? How did we get to where we're going baby PT and speech therapy at home because we paid that much attention at the hospitals? How did I get to where I'm brave enough to tell the kiddos that we're 'going on an adventure' and pack them and all equipment up in the car by myself and head out about town? Who knew?
But I wouldn't change it. This journey we've already been on together has made us our little family. This is how we got here and now we wouldn't have it any other way.
How did we get to have twins, who were 5 months old on Tuesday? How did we get to where we could bring both of them home? How did I become so well versed in all medical things related to the NICU and can hold a conversation and probably fake someone out that I"m a nurse there? How did we get to the point where I'm able to soothe and mostly handle the both of them at them same time? How did we get to where we're going baby PT and speech therapy at home because we paid that much attention at the hospitals? How did I get to where I'm brave enough to tell the kiddos that we're 'going on an adventure' and pack them and all equipment up in the car by myself and head out about town? Who knew?
But I wouldn't change it. This journey we've already been on together has made us our little family. This is how we got here and now we wouldn't have it any other way.
3/02/2010
2/19/2010
It's time
This afternoon it will finally be time - Parker is coming home. He had surgery on Monday for his terrible reflux and all went well. We've had training, have a box of supplies, his moniter, feeding pump ready to go. I took home a bunch of the stuff from his room last night so that we don't have to worry about it today. So now it's time. This afternoon after the doctor rounds we are going up and getting him and all his stuff and come home. Home - all 4 of us under one roof.
136 of the longest, quickest, hardest, best days.
One finish line down, on to the next one.
136 of the longest, quickest, hardest, best days.
One finish line down, on to the next one.
2/10/2010
Angel
To my other one...one year ago today...
Thank you for being an extra angel for me, daddy, Payton & Parker for these last few months
Even if you can't be with us, we know you're here
Thank you for being an extra angel for me, daddy, Payton & Parker for these last few months
Even if you can't be with us, we know you're here
2/09/2010
4 months
It's been 4 months today. 4 months since I woke up in the middle of the night and could NOT get comfortable, since I worked a full day while having terrible back pains on and off and thought they were just being squirrley, since I spent the night tipped on my head getting injected with more stuff about every hour just to have it not work, since I got to meet the two little ones who had been kicking me non-stop after and emergency c-section. It's kind of hard to believe.
Payton was in the NICU for 96 days. When I think of all the stuff that we saw or heard or went through, it's a little overwhelming and I still haven't processed all of it. That's going to take some time. Parker is still in the NICU. Parker has been in the NICU for 121 days as of today. We are working our hardest to get him home, trying to tweak all of these final things so that it won't be too long before he is. It's about time to remind Ms. Payton that she has to share her mommy and daddy time (and those other people that come to visit fairly regularly).
So, what a crazy 4 months it has been. I can't imagine how we got through it in the first place and I can't imagine doing it any other way now.
Happy 4 month birthday Parker and Payton.
(Just 8 months until the biggest 1st birthday party ever :) )
Payton was in the NICU for 96 days. When I think of all the stuff that we saw or heard or went through, it's a little overwhelming and I still haven't processed all of it. That's going to take some time. Parker is still in the NICU. Parker has been in the NICU for 121 days as of today. We are working our hardest to get him home, trying to tweak all of these final things so that it won't be too long before he is. It's about time to remind Ms. Payton that she has to share her mommy and daddy time (and those other people that come to visit fairly regularly).
So, what a crazy 4 months it has been. I can't imagine how we got through it in the first place and I can't imagine doing it any other way now.
Happy 4 month birthday Parker and Payton.
(Just 8 months until the biggest 1st birthday party ever :) )
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