Ms. Payton - the "big sister" is doing ok. She is still at Bergan. She has had a pic line placed that she will be getting her feedings through, and that they will be doing other stuff though it without having to poke her all the time. She got her new vent tube yesterday. The one she had didn't fit quite right and she was getting an air leak around it. Her new one is a new size. They bumped up her milk feedings on Friday (she gets milk from momma for strictly TPN feedings and fluids through IV. No formula). The little girl is getting 1.5 mL per hour. Probably will get bumped up a little more on that in another couple days. She also had a transfusion yesterday. Normal to happen for little ones her size/age. All went well with that too.
The nurses think that she needed some pink so she has a pink bow on her head and a pink blanket on her incubator over the cover. Hopefully she can have a quiet day today without too much going on and get some rest. Although she does like to peak open eyes when she hears voices, especially daddy.
Mr. Parker - He is at UNMC after discovering that he has a small perforated bowel somewhere on his little system. He has a little drain to get some gunk out of his abdomen. When it is done, it will be removed. At some point in the future there will be surgery on the little man to repair it. He's been taken off his milk and is just getting the TPN feedings and fluids (which has all the calories he needs). He got his pic line yesterday and tolerated it well. The doctor is impressed with how stable he is, and that his numbers have continued to improve everyday.
He has his little blue stocking cap to help keep him warm if they have his incubator open or are doing stuff to him. And his blue and orange blanket went with him from Bergan to UNMC so he has it over his incubator.
Mom and Dad - are pooped and sore (well I am). Trying not to hang on to "why" but "what do we do now" and "what's best for both of them". We're quickly getting our degrees in neonatal care. We're creating a list of nurses and doctors that everyone should use. We're trying to find moments when its quiet to be us for a few minutes and to slightly fall apart when needed.
Prayers are still being accepted. Please send one to each hospital.
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