Denied...and so we start over

We showed up at Boys Town Hospital at 5:30 Monday morning with Parker. He was supposed to get ear tubes, adnoids removed and the ENT and pulmonologist were both going to do scopes.We did all the normal check in stuff - weight, meds he's on, etc. We did both his breathing treatments. They even gave him the cocktail of meds to start relaxing him. It didn't take long before he was asleep on Chris' chest and Chris was watching Handy Manny.

The anesthesiologist came in to talk to us. She had gotten all his records from UNMC and reviewed them from his fundoplication and g-button and was pretty familiar with his history. After doing a listen to his chest for quite a while, she told us that he sounded pretty course and she had a real concern for going ahead. She was going to talk to the doctor when he arrived.

When Dr. Lusk came in, he looked worried. He did his own assessment and listened to his lungs. He said "you just get a gut feeling about these things and I don't want to do this today." He's been doing this 30 years so I guessed we should listen to his instinct. He was concerned with Parker having spasms of his airway because of the breathing tube they would use and possibly have trouble breathing normally after surgery. (If they would have gone ahead and told me that he needed to be admitted or was back on a vent, they would have had to admit me).

So we were sent home. No surgery. We were given another antibiotic to try to help clear things up. We go back and see the ENT on Friday and see where we stand. We are also to keeping doing one breathing treatment every 4 hours until then and the other one twice a day until then.

Hopefully by the end of the week we'll have a new date planned. Time for the little guy to get feeling better. It's been a long, not-so-fun summer. Darn you preemie, on-a-vent-for-7-weeks, chronic lung disease, bronchiopulmonary dysplagia lungs.

What we've been up to

Waiting for surgery, baby babble and play dates

Parker is miserable. And he's taking us with him. He is constantly coughing and gagging on all the snot he has. He turns purple all the time and all we can do is hold him and rub his back, and maybe see if he somehow manages to cough anything into his mouth and help get it out. It's awful. We are doing breathing treatments and steroids all the time. I will be so happy next week when he can have his surgery and hopefully start feeling better. Feeling like this for so long is affecting a lot of other areas for him. Hopefully things are about to change around for him.

Payton had to go to the doctor last week. I was concerned about a cough she was having. The doctor decided not to do xrays this time, but we had to do a little work to get her O2 sats up to where they are acceptable. So another antibiotic and more breathing treatments for her. If this keeps up, she'll be going to the ENT soon.

Payton has started to babble a little more. We call Parker 'Bubba' alot and it sounds like that is what she is saying. Too cute!

Last Sunday we went to Sarah's house and had a play date with Austin and Christian. They did so good. And Payton loves trucks! Saturday, we walked to Bayliss Park and met Emelie and Asa for a playdate. Emelie loved chewing on Asa's truck and sitting with Emelie, Parker puttin ghis feet in the water and Asa had a great time playing in the splash fountain. We will definately be doing that again soon.

A special prayer...

For Benjamin...

Born at 26 weeks

Special prayers during this time to your family

Rest well little one

We're starting to countdown

Not that we're not going to do anything until then. We have a full calendar until then, but...

The countdown is on until we turn 1!

And we're going to party! BIG TIME!

So, get ready...you'll be amazed at how big we are by then. and what we can do. Not to mention how far we've come :)

Details coming soon! :)

Love, Payton and Parker

Notes from our week

We had an appointment with the early access clinic this week. They are doing great. They even gave a few ideas to possibly help Payton stop this whole "I turn into another baby at 6 pm" thing. Stay tuned.

Parker started working on some teething biscuits this week. He caught on right away and loves to suck on them. YEA!

We had a visit from Victoria and Dan on Wednesday after "school". They had a great time. And apparently Victoria telling Parker "ham" makes him break out in to the giggles.

The babies have a new ride and we're hoping it is cooler sometime this weekend so that we can give it a try.

Parker has his surgery scheduled for the 30th. Hopefully, even though he's been a happy little guy, it will help make him overall more comfy and less snotty. I'm sure he'll do fine. I'm not so sure about mom and dad though.

It's been a long, hot week. The kiddos have each had 4 hours of therapy and a 2 hour doctor appointment this week. We're all a little tired. Here's hoping we can get in a walk and maybe a few naps this weekend. :)

A public health announcement

I know, it's still just August. Kids are just barely getting back to school. But here is your public service announcement -

Start planning now to get your flu shots!

They are including the H1N1 in with the normal flu shot so it's just one poke. I promise you won't grow a tail and snout if you get it.

Plan on being healthy this fall/winter. Start planning out your contact for getting the shot. Watch for public clinics that will do it for free alot of times. Just do it!

This public health announcement has been brought to you by Payton and Parker - who after their birthday will be going back into hibernation through the flu season.