11/19/2014

Let It Go

Before the snow started falling around here on Saturday, we went to Respite Care for breakfast with the Pancake Man and our friends. Some pancakes and face painting make for a good day.


 
Payton, their buddy Maya, and Parker


Payton and Maya checking out their new "ink"
 

The morning was topped off by a special visit from Elsa and Ana. Nothing is better than meeting the princesses from Frozen.

Payton and Maya getting autographs

Parker and Elena patiently waiting their turn


The girls got the chance to sing with Elsa and Ana (Parker chose not to because "boys don't sing").
This will be 2 minutes of the best minutes you have all day - I promise it's worth it.



 

11/12/2014

Life As We Know It

The past month has been a complete whirlwind. Between the twins' birthday, Payton starting treatment, Halloween and day-to-day life, things have been a little more than average crazy.

Thanks to a really beyond wonderful fall, we were able to spend a lot of time, up until the past couple days, outside and enjoying the sunshine.


We spent one afternoon at the zoo with out cousins. And as has been so many traditions, they had their picture taken on the lion statues near the front.

 
There have been a few happy days after school with a piece of Halloween candy.
 
We've hit the closest Scooters. Coffee for me - seriously you can't go wrong with a white chocolate mocha - and muffins for them.
 
 
Payton is doing fine after her treatment. We are going to Children's twice a week for blood draws and monitoring where she marches around like she owns the place. I'm pretty sure I only go because she can't see over the steering wheel to drive herself.  We finally finished a month of steroids this week - YAY!!! Last week she did get a platelet transfusion because her counts were so low. Her blood counts had held steady for a while but have started to drop off again. We added daily Neupogen injections which we are doing at home. She is doing really well with her picc line. She will continue to be monitored for the next couple months to see if her body wakes up and starts doing what it's supposed to. If not, we'll discuss options and see where we go next. But for now, it's a wait and see.
 



 
 
And, for a minute when it was about mom....
I put on my gear, including my necklace with my two P charms for the twins, and ran my first half marathon in Lincoln. It was amazing. Almost better, was Payton asking if when she gets her "tube" out (picc line) if she can run the finish with me sometime. She also wanted to wear my headband and finishers medal when I got home.