Sometimes all you need...

Sometimes all you need is a little pick-me-up. It can come from almost anyone, in fact that usually helps. If it comes out of nowhere, when you aren't expecting it, it somehow that makes it sweeter.

I got this email from one of the therapists that was working with Parker before we aged out of Early Intervention...

Hi Amy:

Just wanted to check in and see how your life is, and how Parker is doing with the changes he's faced.

So, please fill me in.  I don't want you to be abandoned in this process, I know you're going above and beyond to make everything okay for him.

A pick-me-up. From out of nowhere. And it was very sweet. :)



Coming up...new pictures and more adventures...soon!

The Latest

Things have been a little crazy so here's a few quick updates!

We met with the behavioral doctor at Boys Town to talk about their lack of sleeping. She gave us some things to do - including keeping a sleep diary, much later bedtimes, etc. Well, things haven't exactly worked as she had intended. Later bedtimes led to major behaviors (biting, hitting, throwing things) that they never do other wise, refusing to nap, meltdowns at mealtimes, etc. We go back to see her this week, so we'll let you know how it goes.

We had an appointment with Early Intervention this past Tuesday for speech therapy. Parker is coming on quick with the talking. So for now, we've officially been discharged from speech therapy. This means as of this moment we have been discharged from all therapies with Early Intervention. We can always call them if something else comes up, but for now we're done!

The babies have a new favorite game. It's a little like a modified version of Twister. We throw colored construction paper all over the floor. Then I call out a color and they run to each. They giggle the whole time! And it's great for them to work on their colors :)

Appointment after appointment....

Last week was totally booked with appointments and this momma is still in recovery mode. Since we were approaching their "due date", everyone wanted to get their hands on them and check them out.
Here's the scoop...

Monday, Parker ended up at the pedicatrician. I was so worried about Payton not sounding good that it was a little strange to wake up to Parker sounding awful. It didn't take too long for the doc to call it - croup. With aggrivated BPD, reactive airway, and stridor. It sounded a little like he was always sucking air through a straw. So onto a weeks worth of oral steroids and ramp up the breathing treatments.

Tuesday was Early Intervention. We had out PT, OT, speech, and developmental therapists, case worker and a student all come to the house for our review. They have met every goal that's been put for them so at thsi time, PT, OT and developmental have discharged us. If in the future we need them, we can call and they can come do a new evaluation. Speech has also discharged Payton, but will continue to see Parker for an expressive speech delay.

Wednesday was Payton's turn at pulmonology. She sounded so awful on Tuesday night that if she had had a fever, I would have taken her to the E.R. But we held out at home since we were first up Wednesday morning. The pulmonologist says that she's normal for her - just crappy lungs. The P.A. thought she sounded ok when we were there. If she had souded bad while we were there, we'd of been sent downstairs for xrays. They gave us a script for oral steroids in case she started to go downhill, hoping that would be enough to keep her out of the E.R. They also gave us the inhaler form of one of her breathing treatments. We can use it with her special spacer to take the medicine if we're out and about and she starts to sound a little rough. Next visit will be in 6 months.

Thursday was the NICU follow-up clinic. Luckily Chris came with me to this one because they split them into two rooms to see what they could do without watching each other. When they brought them back together and asked them to do a few things, they were completely over being there. The doc made everyone leave the room and would poke his head in to tell us what to get them to do, then the group of them watched through the two-way mirror at the end of the room. They gave us referrals to a few new places to address some issues, but said that overall things look good and we were being discharged from there as well.

That's the latest from here. They're both holding their own and both just have a cold that hasn't evolved into anything else (fingers crossed!). This week is pretty quiet on the doctor front (fingers crossed again!) except for finally seeing the allergist for Parker.

By the end of it all - with a 2 hour drive home Wednesday nigth from the ice - with work, laundry, groceries, and life, I need a vacation to recover :)

And I promise coming soon....some special events coming up!