4/24/2014

Graduation Day

Payton spent 6 weeks on a ventilator. She had pneumonia once wile still in the NICU, and 2 staph infections. She came home from the NICU on oxygen for 6 months. She was hospitalized for 5 days with bronchiolitis when she was 1 and came home on oxygen for another month. She was hospitalized another time with RSV. She's had pneumonia 6 more times since she came home from the hospital. I've lost track of the number of times she's been to the ER with respiratory problems. She had 2 winters of getting monthly Synagis shots hoping to keep RSV away. We spent 3 winters in lockdown at doctors recommendation.

Tuesday morning she had a follow-up with pulmonology. When the doctor asked if I had any concerns...I couldn't think of any. When Dr. Toni asked how the winter was...I didn't have anything to say. We'd gone all winter without any major illnesses, she's hasn't been to the ER, been on antibiotics or steroids. Payton had a wonderful winter.

Dr. Toni looked at me, teared up, and said she's graduated. We can call or go back if we need to, but otherwise, she's discharged. There were big hugs, a few tears and high-fives all around.

4 years and all that history later...she graduated.



P.S. - She weighed in at 41.5 pounds for her appointment. Exactly 40 pounds heavier than her smallest ever weight. :) Unbelievable.

4/12/2014

On love and grief

Friendships between preemie moms is an unusual thing. We are brought together by one of the hardest, worst times in our life. Most of us have never met, but have been connected through our computers, with the hope one day to take some sort of wonderful vacation where we all meet, sit on a beach and drink fancy drinks out of a pineapple brought to us by a cabana boy (hey, a girl can dream). We know details about each other and our kids, we cheer on, pray, get angry, share advice, love and at times grieve. It is a strong bond.

Last weekend we grieved. Sheena, one of our moms, lost her little girl Laiken. After more than a 3 year battle, done with more grace and strength than I've ever seen, Sheena, along with her husband and other daughter, said good-bye to Laiken. I'm not sure how a little girl who's only 3 touches so many people, but she did.

While so many of us wanted to be at the funeral, distance doesn't always make that possible. After Laiken's service on Thursday, Sheena and her family did a balloon release of pink and purple balloons. So, that's what the rest of us did too. Where ever we were on Thursday, we call grabbed our little ones and pink and purple balloons and did the same.

The twins and I headed to one of the highest spots in town after dinner and let our balloons go.











Fly high Laiken!

If you want to know more about Laiken and her amazing family, go here - https://www.facebook.com/LoveForLaiken

If you want to see pictures from people releasing their balloons from all over for Laiken, go here - https://www.facebook.com/events/733817389971667/735094923177247/?notif_t=like

4/06/2014

The results are in...

Since we've already passed the first official day of spring, and we've already crossed past April 1st (which will always mean the "end" of flu/RSV season  in my head), I'm going to officially throw this out there....



We went 6 months with NO hospital stays, ER trips, antibiotics, major steroid use or doctor visits outside of a few regularly scheduled appointments.

We had a few colds but everything we were able to manage at home and stay out of the doctor offices and manage all symptoms on our own. More importantly, their little selves were able to handle it all on their own. Even last winter, at doctor's recommendation, we were on modified lockdown for the winter.  This year we we had free reign.

Winter 2013-2014.....SUCCESS!!!

3/29/2014

Prom Time!

This past Thursday night was the annual spring dance at my work for our residents. And of course, the duo has been excited for WEEKS to go. Payton wanted a party dress which she picked out with Mamaw. Parker I don't think quite understood that it wasn't Halloween and wanted to go as Batman. He's 4, and really it's about having a good time...so he want as Batman to keep everyone safe and scare away the bad guys.
Payton has talked for a month about needing to get "damn shoes" for the dance. After much debate and trying to hard to figure out what she was talking about, we settled on these little silver sparkly shoes. 

Dancing in the middle of the dance floor eating cookies.  

Batman hanging ou t with the big boss...stopping for a quick drink. 

Their friend Megan was there and they were in love dancing with her all night. 


And this year's official prom picture....is amazing!

Happy prom season!

3/20/2014

Movin' On Up

Since they both finally meet the height/weight requirements, we've moved on up. Big kid seats. 



Seriously...wasn't it just yesterday that she couldn't even pass her car seat test to come home??? And wasn't I hauling them both around and carrying two infant car seats around like a champ...like...last week??? 

3/10/2014

Spring is in the air

On Sunday, just for a moment it felt like spring. And it was amazing. 








Hang on...more to come soon!

3/05/2014

Spread the Word

Yep, it's today.

Talk about it. Talk about not talking about it. Stand up to it. It's important. 




Want to know more? Go here