5/16/2011

I want to get off the hampster wheel!

Last Monday was when I had Parker in the ER at 3 a.m. That led to a very long day at work immediately following. And a very tired kiddo from the trip with a sore thigh from the big steroid shot he got. Then the next 7 days went like this...

Wednesday I took Payton to pulmonary clinic for a follow-up where I was hoping to be discharged. Nope. Not happening. Because of her hospitalization over the winter we're on the hook for the same med routine with her for the next 12 MONTHS! That's right - if you had any doubt they have crappy lungs, there's your proof.

Thursday we had to take both kiddos to the NICU follow-up clinic for a 2 hour appointment. Yikes! They both had had enough by the end. I was able to bring up concerns. We did some testing and left with referrals for other appointments to make. When they got back to respite care when it was over, neither woke up coming out of the car, being put in the stroller or being pushed inside.

Friday, after a week of Payton being sick where a runny nose turned into a cough which turned into wheezing, I managed to beg my way in to the pediatrician in the afternoon before the weekend. I did not want to end up back in the ER. A little fluid in the ears, a viral something going on paired with those crappy lungs and you have a little girl having her oxygen sats checked every two hours by respite. She also spent the weekend mostly getting treatments every four hours. And he wants to see us back in a month to talk about the fluid in her ears and see if it's gone. If not, we'll talk tubes.

Saturday we stuck to our antibiotic for the ears, breathing treatments for both, and making a list of all the appointments to make on Monday. Sunday night was a little rough (Parker thought we should stay up and watch Dateline reruns) but this morning went ok. At least until I got a phone call a little after 10:00 - Parker has a fever and he's trying to throw up, Payton is throwing up. Three strikes.

If you have a few spare thoughts or prayers for us we could us them. It's spring and we're supposed to be done being sick (at least for a little while) and ease up on the appointments a little.

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