Parker's Next Round

As your making out your to-do lists for the week, if Wednesday is looking a little light for you, we'd love if prayers for Parker could get added to it. The little man will be going in for his latest Esophagogastroduodenoscopy with biopsies for his eosinophilic esophagitis - or an EGD for his EOE. Such big words for such a tiny boy! We've done his a handful of times before so I'm not worried, but I'm hoping for a quick day in and out. Boys Town is the place to send them, Wednesday morning is the time. We'll keep y'all updated. And thank you as always!

We Went, We Marched

This past Saturday we headed down down for March for Babies. I just didn't have it in me for all the work that comes with getting a big team together, fundraisers, etc. But we did go walk, we did get some donations and we went to be part. We ran into some of the nurses from Bergan that remembered us. We saw one of the kids' teachers who was there walking for her own preemie. Lots to see and do, lots of puppies to pet, it was a good time.

We made sure to check out the entire area before the walk actually started. The twins thought they should carb load to be ready.

They did a great job on the walk. So proud of them!

And just for a well rounded reminder of all the preemie stuff...we had to hit the ER Saturday evening with Parker. He lost his balance on the stairs and slid backwards down them on his tummy. For most kids, no big deal. For kids with g-button, that's a bad combo. He told me his button hurt. When I looked at it it was half pulled out. I couldn't get it out to change it and put a new one in and he was screaming like he never does. So him and I went to the ER for a little help.Since I had an extra button already and just needed some help getting the button out, we didn't go to Children's this time and went to Mercy which is much closer.  I'm pretty sure we made the doctor's night. He kept saying "I don't ever get to do this" and "I don't usually get to see this kind of stuff". He also looked like he could have sat there all night as I told him the very brief version of Parker's history. We were home pretty quick...all better and a brand new button.

Silver Lining

Things have been heavy on my mind lately. Lots to do, not enough time. Spring can't come fast enough. And then during a moment on a beautiful Sunday afternoon at the park, when I thought the fresh air and sunshine were enough to help, I caught my silver lining...

The Dude

We finally had Parker's update after his last procedure. Here's the skinny-

His EOS wasn't taken care of by being on twice daily Prilosec. In fact, his counts of bad cells in his esophagus are actually getting higher. And now there's evidence of these cells in his stomach as well. Not the best news. This is not something that goes away or he will outgrow. You can treat it, but you can't cure it.

So we will continue on with the meds we're already on and add another twice daily one to the routine.We will go back in 4 months for another scope and another set of biopsies. So we carry on, and see if we can make it easier for the little man to eat.

Here's his mug shot from the weekend - covered in dirt, bubbles, and sidewalk chalk. And not overly happy that mom's taking his picture.

Extreme Makeover: Parker Edition

For 2 years Parker has had the worse case of cradle cap. We have tried EVERYTHING to make it go away and nothing has worked. We've talked with several doctors about and even had prescriptions but it was still there. All the sudden, it seems to take a turn for the worse for some reason. So we decided enough was enough. Time for drastic measures. We decided to give him his first real haircut.

This is his before (before he knows what's about to happen)-

And this is his during and after-

Trying to make Parker feel better, Chris shaved his head at the same time. I even got Parker to say payback as we started shaving daddy's head. I hope winter decided to stay away or we'll have to go invest in some extra stocking hats for the boys.